Right now we are waiting for the results of the boys newest testing they have undergone at school. I thought they were going to do the ADOS after Spring Break, which is next week, but I guess they already did it. We opted to let them do it during school, without us there. I would have been a wreak if I had to observe and with Judah, well it was just easier to have them do it there. Does that make me a bad Mom for not being there? Am I supposed to be there for everything like this? Does it make a difference? Next week I have an appointment to do the parent interview on Tuesday. It makes me crazy just thinking about it.
This test is kind of it. It takes them officially out of the “Language Delay” that they put them in to fast track them into services back in December when they first tested for autism. I guess until this ADOS testing is done it’s not really “official” but all signs point to Yes.
At least until we get them a medical diagnosis. I’ll probably start getting on waiting lists once we have the ADOS results for Dr. B and then we’ll start lining up everything he wants to test. That’s a whole new ball of wax.
The thing is, they have had some really great days, dare I say weeks. I think learning a bit more about “heavy work” and playing to their sensory seeking needs has helped a bit. Whatever it is, we’ve had some progress.
There is pointing. Lots and lots of pointing. Mostly in the form of them grabbing our fingers and dragging them over to whatever they want us to explain (letters, shapes, objects, words). If they aren’t happy with what you tell them, they point your finger harder. Sometimes it take 5 or 6 repetitions before they get it. Lincoln is big on pointing, more so than Wyatt. Lincoln will open a book and if you ask him where the Horse is, he’ll point your finger at the Horse. We have a bit of difficulty telling the difference between the Tucan and the Butterfly, but I think I can let that slide. Wyatt is sticking to pointing to letters.
Which brings me to the alphabet.
Wyatt knows the alphabet. Actually, he knows his uppercase letters whether they are in order or not. He can get most of the lowercase letter too. He spells out everything he sees. Signs (A-T-mmm), words in books, anything he can find, he spells. It’s pretty awesome. Our favorite game is going back and forth singing the alphabet. I’ll start with A, he says B, I say C and so on and so forth. At the end I always clap and say Yea!!!!! So now when he says the alphabet to himself he says T-Woo-V-WooWoo-X-Y-Z-YEA!!!!
And “W” is pronounced “woowoo”. Cutest thing ever.
So we’re doing good.
I know this is just the beginning and I know we have a long road ahead of us and I know my job is to be on top of this, but I just want someone to tell me what to do. What therapy, what school, what the next step is, etc. It’s a lot. And it’s kind of choose your own adventure at this point. And because they are 2, it’s difficult for anyone to say one way or the other on anything. If they can even say at all.
So we’re in the middle of round 2 here. But we are encouraged.
We have had more engagement (and easy engagement!) in the past week than we’ve had in a long time. It’s pretty awesome.
Can I just say how much I love my boys?