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Autism Awareness Month: Day 4

Posted: April 4th, 2011 | Author: | Filed under: Autism | Tags: Autism, Autism Awareness Month, Birth to Three, Lincolnton and Wy | 4 Comments »

Today was the first pre-assessment meeting at the private non-profit we’re looking at for extra services for the boys.  We both agree that they are making great progress at school, but are looking for extra speech and OT to round out the week.  Our insurance pays for many of the things we need, but with 2 (even with 1) co-pays add up quickly, so we’re hoping to get some extra coverage through the state (county?).  First we need the medical diagnosis.

There is a 7-9 month wait for that.

We’ll get a bit of a bump ahead because of their loss of language and their age, how much of a bump is yet to be decided.

In the meantime we have more consults and evals and meetings to discuss all of the findings of those with the parties who are observing and also our pediatrician.  Because everyone needs to know.  All of a sudden, out of nowhere, it’s getting a bit overwhelming to look at my calendar and see so many days that I need to be somewhere.  So many days that Yogi Dad needs to try and get out of work early.  So many days we need to arrange childcare for 1-3 of the boys.  It’s overwhelming. 

And it’s just the beginning.

I’m so glad we didn’t start this process way back in January.

I’m happy we were able to have some home visits and go right into the classroom.  I am glad we’ve been able to do this on our own timeline while the boys are getting what they need.

If I would have had to deal with all of this in January, I might have had a nervous breakdown.

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4 Comments on “Autism Awareness Month: Day 4”

  1. 1 julie ecklund said at 8:32 pm on April 4th, 2011:

    Erin,
    I am so proud of both you and John for hanging in there. I know this has to be very over whelming. I am the Grandma, but I have also been a Mom. I know how difficult things can get. I am there to help you as much as I can. I too am starting to feel a little overwhelmed.
    Love you,
    Mom

  2. 2 erinclot said at 9:08 pm on April 5th, 2011:

    You can't feel overwhelmed! You're MY MOM :)!!!

  3. 3 Allyson Stewart said at 9:10 pm on April 4th, 2011:

    Hey Erin I just started reading these I had no idea your boys have Autism! My daughter is adopted and may has Asberger's (sp?) Syndrom but she also has been diagnosed with ADHD, RAD (reactive attatchment disorder), and Depressive disorder! So I fully understand how overwelming this all is!!! Kylee is also on the wait list up here in St. Cloud to be tested for the Asbergers (sp?) and it is looking like it won't be till fall! Anyway, my sister and one of my PCA's are behavioral therapist for Autistic children so if you would like some free advice I know my sister for sure would be more than willing to help you out if you need or want if I can't answer them for you, I have become quite knowledgable is so many areas due to Kylee 🙂 But I also know of services out there too so let me know if you would like to talk more and I could give you my number 🙂 Good luck and hang in there I am sure you are doing a wonderful job!!!
    Take care,
    Allyson (Lindahl) Stewart

  4. 4 erinclot said at 9:07 pm on April 5th, 2011:

    Yep, we got our first diagnosis the week before Christmas. The boys have been in school since January and now we're looking into extra services and waiting for the medical eval etc. It just all of a sudden got to be a lot of stuff all at once. I'll keep you on my radar if I have questions, thanks for the offer of support!


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